The 50 list: Nigel Holland

50-listNigel Holland, in his early 50s, suffers from an inherited genetic disorder known as Charcot-Marie-Tooth disease (CMT), which is a motor and sensory neuropathy. Basically, this means that his nerves cannot communicate action messages to his muscles. He was diagnosed in his infancy and, since then, has progressively lost his ability to live independently. He has been confined to a wheelchair for many years, but has never let this get in the way of meeting the challenges of life. In his own words, he may have a disability, but he is definitely not disabled.

This book is a diary of one year in his life (his 50th year) when he set out to complete 50 challenges, which not only included obvious challenges like scuba diving, zorbing and drag racing, but also less obvious ones like making a creme brulée and completing a 1000 piece jigsaw puzzle. The whole book is written as a message of hope to his young daughter, who has inherited the condition, and Nigel wants her to know that she doesn’t have to lower her sights in life because of her progressive disability.

Writing the book itself was one of the 50 challenges, and I would heartily recommend it for its very human story.


About Frank Burns

Looking for the extraordinary in the commonplace………taking the road less travelled……..striving for the ‘faculty of making happy chance discoveries’ in unremarkable circumstances. Click on the Personal Link below to visit my webpages.

Posted on November 17, 2016, in Uncategorized and tagged , , , . Bookmark the permalink. Leave a comment.

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